A Night for Jax
Benefiting the Cystinosis Research Network
Event Information
A Night for Jax
When?
Sunday, Sep 30, 2018, 03:00 PM
Where?
Shady's Tap Room, North Main Street, Brooklyn, MI, USA
Event Details
A Night for Jax is a benefit to raise money for the Cystinosis Research Network. This nonprofit organization provides funding to research the incredibly rare disease Cystinosis, as well as provide assistance to individuals with this genetic disease. As many of you know, our son Jaxon Meschke was diagnosed with Cystinosis in January of 2018. It has been a trying and overwhelming eight months. With the amazing support of friends, family, and the amazing crew of doctors at U of M, we are beginning to settle into our new version of "normal."
Shady's Tap Room will be graciously hosting A Night for Jax Sunday September 30th, from 3-7pm. During that time frame Shady's will donate 25% of all their sales for us to give to the Cystinosis Research Network! We will have a large silent auction (sorry, cash or check only), a 50/50 raffle, and live entertainment from the band Wynwood! Please come out to eat and drink with us, while we raise money to help find a cure, all in the name of Jaxon!
If anyone would love to donate but cant make it, you can go to www.cystinosis.org and donate directly in honor of Jaxon Meschke!
** If anyone is interested in donating items to the silent auction please send a personal message to Chelsea or Brian Meschke! All donations are tax deductible!
Shady's Tap Room will be graciously hosting A Night for Jax Sunday September 30th, from 3-7pm. During that time frame Shady's will donate 25% of all their sales for us to give to the Cystinosis Research Network! We will have a large silent auction (sorry, cash or check only), a 50/50 raffle, and live entertainment from the band Wynwood! Please come out to eat and drink with us, while we raise money to help find a cure, all in the name of Jaxon!
If anyone would love to donate but cant make it, you can go to www.cystinosis.org and donate directly in honor of Jaxon Meschke!
** If anyone is interested in donating items to the silent auction please send a personal message to Chelsea or Brian Meschke! All donations are tax deductible!
Life with Cystinosis
Sometimes until your in the thick of something, it’s hard to truly understand it.
This picture represents A typical morning for us.#adayinthelifeofacystinosiskid is time consuming.#JaxonLeland wakes up at 6am for his bottle and about 6 different medications. Most of his bottle he takes orally, but whatever he doesn’t finish we put through his g-tube; along with all his morning meds! He really has gotten used to it, so it doesn’t bother him too much! He usually just watches Mickey Mouse and relaxes in his chair ❤️
This picture represents A typical morning for us.#adayinthelifeofacystinosiskid is time consuming.#JaxonLeland wakes up at 6am for his bottle and about 6 different medications. Most of his bottle he takes orally, but whatever he doesn’t finish we put through his g-tube; along with all his morning meds! He really has gotten used to it, so it doesn’t bother him too much! He usually just watches Mickey Mouse and relaxes in his chair ❤️
Donate to the cause!
If anyone would love to donate but cant make it, you can go to https://cystinosis.org/how-to-help/donate and donate directly in honor of Jaxon Meschke!