My Eyes Can See
Just not like yours.
Hello. My name is Joy and I am a 9 year old girl with Low Vision.
I have a rare condition called Leber Congenital Amaurosis (LCA). It an inherited retinal degenerative disease-you can't catch it! People with this disorder typically have severe visual impairment beginning in infancy or toddler age. My fine vision is gone, and I can’t detect light and color, but I can see shadows of figures.
What you need to know about me.
- I am not being rude by not looking at you, it is the only way I can see (even if it is just a shadow).
- I have to turn my head to see even a little.
- I am not totally blind, I can see shadows.
- Lights can bother my sensitive eyes.
- If you (the teacher), address students’ questions about my disabilities at the beginning of the year, it helps them to understand, and helps me to fit in because the other kids know what to expect.
Technology That Helps
- I like playing with my friends.
- I love music (not too loud) and singing.
- I have a great memory.
- My sense of touch is excellent. I am a tactile learner.
- I have no visual cues. I can't see facial expressions or if you are pointing at a poster or the board. I need verbal cues.
- I need you to read instructions out loud and repeat the important information.
- The more you talk, the better it is for me!
- Please keep my seat and other material in the same spot. I need things to be predictable.
- If you provide me with audio tapes on topics, I can follow along at my own pace.
- Sometimes I need a buddy to help me go places.
- I can read some things if you enlarge it and provide me with a magnifier.
Technology That Helps
- I have a Refreshable Braille Display which is an electronic device that I use to read text tactually print that is typically displayed visually on a computer monitor.
- Sometimes I let my friends try my equipment because it makes me feel like the situation is "normal" and they usually think it is pretty cool.
Believe in me! I need you to have high expectations for me!
- Let me do as much as I can on my own.
- If I fall I can pick myself up. I have probably done it before.
- Remain calm and simply ask if I need help, if I say “no”...please believe me!