Von hippel lindau syndrome
What is VHL disorder?
Pheochromocytoma which is a small vascular tumor leading to these symptoms: High blood pressure, sweating,headache, etc. Or there is hemangioblastoma which is tumors in the body having these symptoms difficulty walking and difficulty using muscles.
Medical assistance needed and the long term outlook
The child will need a team of specialists. As they get older they will need surveillance for tumors and they will also need genetic counseling. The most common tumors will happen at age 33.
Where does it happen in your body?
There is surgical removal, laser photocoagulation,radiation and cryotherapy. But there has not yet been a cure to prevent this disease.