Angels Of Epilepsy Sept. Newsletter

#AOENEWS, Blogs, Articles, Events, & More!

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By analyzing brainwaves, two teens may have found techniques to scout for early warnings

LOS ANGELES, Calif. — Seizures can be debilitating. They can strike with little or no warning. And if one comes on when someone is driving or engaged in some other type of physical activity, they might also prove dangerous. But research projects by two teens now suggest that a simple device that monitors brainwaves might warn when a seizure is on the way. And that may save lives, the young researchers say.



Epilepsy is believed to stem from overactive neurons, or brain cells that conduct electricity. This brain disorder often triggers seizures, which are uncontrolled “electrical storms” in the brain. Each patient’s epilepsy can be somewhat unique. In some people, those electrical storms occur throughout the brain. In others, the storms are more localized. That is, they take place in one particular part of the brain. For many people, medicine can partially or totally eliminate the risk of seizures.


Read more: https://www.sciencenewsforstudents.org/article/when-epileptic-seizure-about-strike


- Article from: sciencenewsforstudents.org

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If we can manage and reduce extra stress, why wait? There are certain mindsets and things we can implement and develop so we can reduce all the extra stress that comes with living with a chronic illness. When our health is uncertain and we live a constantly wobbly journey day-to-day, the more ways we can reduce any extra stress the better for our selves, families, and lives overall.



1. Maintain a routine as much as possible – Routines are the cornerstone to stress management. Living with a chronic illness and not knowing how you’ll feel day-to-day can make keeping a routine difficult. But for the most part, keeping simple routines in our days is so helpful. For the things we can control, it can give us a little peace. You don’t have to constantly be stressing out over planning each new day; instead you fall into a rhythm accomplishing Monday’s tasks, Tuesday’s tasks, etc.


2. Develop a strong support system – The sooner you realize and establish this, the better. You don’t have to shoulder all the stress and bourdon of an illness by yourself. It’s okay to accept the love and support from your family and friends. They want to help make things easier on you and help manage the “other things” while you focus your energy and keeping yourself as healthy as possible. (Bonus: The free hugs they give help a lot too!)


Read more: https://strengthandsunshine.com/remove-extra-stress-chronic-illness/?utm_content=bufferc8675&utm_medium=social&utm_source=pinterest.com&utm_campaign=buffer


-Article from: strengthandsunshine.com

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Epilepsy Champion In The UK

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"When I was 19, I suffered brain injury as a result of boxing. The doctors told my parents I was brain-dead and asked them for organ donor from me which they refused after three weeks in a coma. I opened my eyes for the first time that is when the real battle began. Now 19, unable to talk, sit up, never mind walking with the right hand side of my body paralysed, I refused to accept this after two years in a hospital rehabilitation with various speech occupational and physiotheraphy.


It was back then, the seizures began which I still fight to this day. I am 48 now and I take daily medication of Keppra 250mg, Phenytoin 400mg, sodium, and Valproate 2000mg. I am a boxing coach PT, nutritionist, and a real fighter.


I believe you can do anything you want to do. Don't let anything or anyone hold you back! I want to motivate and inspire anyone who have suffered similar circumstances to mine.

https://www.youtube.com/watch?v=F00tGfxrze4&sns=em

I would really like to get involved more helping other people to battle epilepsy. I still think in the UK especially, they like to keep it low key and do not really like to talk about it. I have asked for support with certain epilepsy groups in the UK for me to wear the logo on my team top but because it is a combat sport for some reason they turn me away. I tried to tell them that epilepsy can affect anyone at any time which obviously they know that but there still not willing to let me put the logo on my team T-shirt.


I really want to get it out there more. I am not asking for no money whatsoever or for financial gains. I just want to make people aware of epilepsy and to bring it out in the open because as you know by watching the film, I never told anyone and was ashamed about it. I don't want other people to be in the same place I was with the same mindset.


I suffered for a long time with depression and everything else what comes along with the medication. I was so angry but my bitterness turned into better than this. I want everyone of us all to fight this together and to get it out in the open to support epilepsy awareness. I really want to get involved more but I'm continuously getting the door shut in my face. I am currently working on a film, with a full film crew, which is going to be about 45 minutes long talking exclusively about living with epilepsy."


Thank you,


Wayne B. Smith/UK

Epilepsy Survivor, Advocate, Mentor

Instagram: waynebsmith

Twitter: @waybsmith

** Angels Of Epilepsy really enjoyed interacting with Wanye Smith in the UK and hearing about his battles living with epilepsy. Us here at AOE would like to send our best wishes and support to Wayne and know that your voice is heard and will be heard by many more! Thank you for expressing your life with epilepsy!

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More Americans than ever are living with epilepsy, federal health officials reported recently in August 2017.


According to the new report, 1.2 percent of the population -- about 3 million adults and 470,000 children -- were being treated for epilepsy or had experienced recent seizures in 2015, the researchers from the U.S. Centers for Disease Control and Prevention said.


The number of adults with active epilepsy rose from 2.3 million in 2010. Epilepsy among children rose by 20,000 between 2007 and 2015, according to the report's coauthor, Rosemarie Kobau, the head of the CDC's epilepsy program.


Read more: http://www.newsmax.com/Health/Health-News/record-number-epilepsy/2017/08/11/id/807102/


- Article from: newsmax.com

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Your Support Matters!

Join us and help those affected by Hurricane Harvey in Houston, Texas. Go to www.redcross.org to make a donation. Also, search your local community centers, news stations, etc to see about other donations that will be shipped to Texas.

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"Years ago, I heard about "cannabis oil" and how it can help those living with epilepsy and seizure disorders. Yes, when you think of cannabis, you say, "marijuana." I said the same. Well, I received many emails and messages about how this drug has a major decrease in seizure activity, especially in children.



So, I decided to do my own research. I read a lot of the emails that were sent to me which had articles and some videos of how cannabis oil helps so many, not just with seizure disorders but those living with AIDS, HIV, Multiple Sclerosis, some forms of Cancer, and more. I was really shocked! As I saw more articles about children battling multiple seizures on a daily basis and to actually see how this medicine calms their body from the episode and decreases their seizure activity, it made me wanted to do something!"


Read more: https://www.smore.com/5uhj0-a-medicine-many-fight-for


-Article from: Angels Of Epilepsy Blogs

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Dear Angels of Epilepsy Community & Supporters,


Angels Of Epilepsy is currently seeking corporate sponsors and individual donors for our 9th Annual Awareness Celebration. The event will be held on Saturday, November 11, 2017 – time and location to be determined.


Our sponsorship packages are an excellent opportunity to spotlight your business/services and gain new customers and clients. Proceeds from the event will be used to help continue Angels Of Epilepsy’s mission to assist those diagnosed with epilepsy, as well as their families or caregivers.


AOE 2017 SPONSORSHIP PACKAGES


Sponsorship Package #1 - $25

  • Company announcement/display at the celebration


Sponsorship Package #2 - $50

  • Company announcement/display at the celebration
  • Company spotlight in Angels of Epilepsy Monthly Newsletter – November 2017


Sponsorship Package #3 - $75

  • Company announcement/display at the celebration
  • Company spotlight in Angels of Epilepsy Monthly Newsletter – November 2017
  • 3-month corporate partnership listing on Angel of Epilepsy website


Please contact Natalie Beavers at angelsofepilepsy@gmail.com or 678.239.4193 to purchase a sponsorship package. The deadline for sponsorship purchases is Friday, September 15, 2017.


If you’re unable to purchase a Sponsorship Package, but would like to make a donation to support Angels of Epilepsy, visit our website: http://www.aoepilepsy.org/


Thank you for your consideration and generosity. Your support is sincerely appreciated!


Kind regards,


Natalie Y. Beavers/Founder-President

~Angels of Epilepsy Inc.~

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AOEat's Healthy On Pinterest

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Ingredients

Serves 8


Produce


  • 1 Avocado


  • 2 tbsp Cilantro and/or parsley


  • 1 Cucumber


  • 1 Green onion


Condiments


  • 1 tbsp Lemon juice


  • 1/4 cup Remoulade sauce



Baking & Spices


  • 1 tbsp Creole seasoning
  • 1 Salt and cayenne


Oils & Vinegars


  • 1 tbsp Oil


Other


  • 1 pound shrimp, peeled and deveined


** Follow Angels Of Epilepsy on Pinterest to get more great recipes!

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Angels Of Epilepsy ( "The Seizure Diary" )

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DONATION

Angels Of Epilepsy give gifts to children, teens, & adults living with epilepsy at local hospitals and supply needs for their parents and caregivers. We also ship gifts to patients out of state. AOE thanks you for your support! #EpilepsyLivesMatter