Beatrice's Story
Presented by The Dream Team
What is JDM?
JDM stands for Juvenile Dermatomyositis. It is an autoimmune disease that affects the immune system, the muscles, blood vessels, and the skin. The immune system is a group of cells that protects the body from infection. In JDM, the cells actually fight the body's own tissue, causing muscles to shrink and become weak. It also has blood vessel involvement which can be severe. Calcium deposits also occur very often in patients with JDM. In 2014 , Beatrice Trap Tremaine at age 9 was diagnosed with a severe case of JDM. If JDM is not treated immediately it can kill children under 12 years old. JDM patients can't go in the sun because sun can bring back the disease and make it even worse than it already is. Their bodies aren't capable of fighting off the disease since the muscles are under attack. JDM affects 3 in 1 million children each year. There is no known cure for JDM as of now, but there are effective treatments.
What will The Dream Team do for her?
The Dream Team will bring Beatrice to Venice, Italy and have a private, serenaded sunset gondola. The gondola will have a nurse aboard and include a ramp for her wheelchair. She will be transported to Venice in a private jet sponsored by Shailene Woodley and Jennifer Lawrence. She has a great interest in the Hunger Games Series and the Divergent Series. She thinks that she's just going for a special doctor's visit, so she has NO idea about the gondola. We will also treat her in a deluxe hospital room with a hotel feel. Afterwards, she will eat delicacies, like low sodium spaghetti, lasagna, and gelato.
What will she take to Venice?
Since JDM effects the muscles, Beatrice needs to transported by wheelchair and need her medications, like some I.V.s, Prednisone, Cellcept, Methotrexate, and Solumedrol. It is important that Beatrice takes these medicines to reduce the effects of JDM. Also, since her favorite actresses are coming, her mom secretly brought pictures of Shailene Woodley and Jennifer Lawrence for autographs.
Types of Medicines she needs
Since Beatrice has an autoimmune disease, she needs to take special medications.
I.V. with medicine for weekly infusions of solumedrol 900 mg each dose
Prednisone 10 mg daily
Folic Acid 1 mg pills daily
Cellcept ( mycophenolate mofetil) liquid 2 times a day 30mg every dose so 600mg every day
weekly shots with methotrexate 20mg no folic acid on shot days They are all poisons to shut down immune system so the immune system doesn't attack the muscles.
Beatrice's Sunset Gondola Destinations
Who will she meet in Venice?
Jennifer Lawrence
The actress who plays Katniss Everdeen in The Hunger Games.
Shailene Woodley giving an autograph
Shailene Woodley
The actress who plays Tris in The Divergent Series.
Wait a minute, who wrote this?
Well, it's of course made by the best people EVER:
Emma S, Emma J, Brianna D, and Jessica M!
Pros and Cons
Pros
Beautiful sight
FUN
It will take away stress
Really exciting
Clear her mind
Can learn their culture
Can't have a lot of Italian food
Can't be in the sun (she could die)
Has to stay inside from the sun
- Not very mobile