SATURDAY SEPT 7th 2013 @ THE AMERICAN LEGION HALL, FAIRBANK
For Jenny Albrecht-Hunziker, Morgan Miller, Brexton Miller & Sadie Hunziker
Dinner 4pm-6:30pm~~Live Auction at 6:30pm~~Dance 9Pm-? Live Music by
The Bar Flyz
Brad & Jenny Albrecht-Hunziker live just South of Fairbank. Morgan (16) is a Junior & Brexton (13) is in 8th Grade at Wapsie Valley Junior-Senior High School & Sadie (5) is in Kindergarten at Wapsie Valley Elementary in Fairbank
Jennifer & Her 3 Children were diagnosed with Late Stage Lyme Disease in the Spring 2012 causing them ALL severe complications!
jenny initially became critically ill 3 years ago forcing her to leave the job she loved in 2010 & since has mostly been on bed rest & unable to drive. Jenny & her Son Brexton are finally in the final diagnosis process of an Inflammatory & Nerve Damaging Brain Disease..She says FINALLY in relief, As likely it'll include covered treatment that'll help them feel better & lessen Neuro Symtoms/Damage & Pain! ALL due to Untreated Lyme for so long as they were able to determined Jenny's had Lyme for 26 yrs. Jenny continues IV Meds..but Her & her kids keep getting worse. Jenny has many systemic complications that damaged all of her joints, spine & connective Tissue, Drs. told her shes much to ill for surgery she'll have all her joint replaced that can be, later.
Jenny & Her Kids ALL suffer from Nuero & Systemic Complications..Joint Damage & Diseases, Joint Stiffness. Vision issues & Hearing issues, Severe Tinnitus; Tingling, Numbness, Burning & Severe Chronic Pain in- The Back, Neck, Jaw, all muscles, all joints, Bones, Nerves, Hands, Feet & have severe Headaches, Seizures, Muscle Spasms, Tremors & Convulsions, there are too many complications to list.
Brexton also was Diagnosed with SEVERE CNS Lyme Disease Infection, which they all have but his is much worse than the rest of theirs. Brexton was Diagnosed w/Juvenile Rheumatoid Arthritis Dec. 2013.
Morgan, Brexton & Sadie all have Congenital Lyme Disease (passed during pregnancy). Including PANDA's (A pediatric brain infection), which caused Morgan to suddenly develop severe vocal & physical tics in Apr.2013, similar to Tourette's, The Tics were so severe that she couldn't do/go anywhere, even another room unattended & she had to miss out on a year of High School, finally she was able to go 3 classes a day in 01/13. Morgan finally got approval on 8/12 for 6 mos of IVIG treatment w/help from a Senator, but Morgan has NEEDED continued IVIG treatment. They've been fighting for her to get it approved again since Feb thankfully w/the same help! In the first 6 mos of IVIG Morgan they saw significant improvement, she still had minor physical tics but now they've been becoming harder to control w/Meds so she's showing signs of relapse. The Lyme Neurologist said Jenny needed IVIG too due to her immune system being totally suppressed & that Morgan needs at least another 6 mos of IVIG but 3X's Every 10 days, Instead of 1X a Mo. As she had the first 6 mos! At $1,000 for every 10 lbs the patient weighs that's why Insurance fights approval.
Its common for Lyme patients to suffer & get worse while their Insurance neglects coverage of Appt's w/Drs trained&experienced to treat Lyme & also they deny treatments, meds, etc. as Insurance Co.'s claim its ALL 'experimental'!
Jenny & her Kids' symptoms & pain vary in severity & symptoms from Day to Day It's hard for others to understand, As Lyme & Mostly all their complications are Invisible Illnesses, most ppl Real & severe this Disease is and hard to understand that just bcus they can do something 1 day doesn't mean they can do it again the next day, week or year..it is common to have varying Flares that change day by day or last anywhere from weeks to years.
There are few Lyme Doctors in our area, most don't have as many Yrs. of experience & learning as the Lyme Doctors in Endemic Areas. which is why they must see the Dr. In San Francisco, CA. who has experience to Diagnose & Treat the Nuero Diseases for Jenny & Brexton, Treat PANDAS, & treat the complexity of their cases, they first go 7/20/13 for a wk & must return approx. every 4 months, which travel expenses in addition to all the expenses of Appt's, Meds, Treatments, etc. it's impossible to afford to treat 4 ppl with this disease, as many cannot afford treatment for one person. without the help of Family they would have lost their home & couldn't have afforded the treatment they've received in just the 1st year & they still have a very long road ahead!!
While Lyme patients suffer and get worse Insurance neglects to cover Dr. Appt's w/Drs trained & experienced to treat Lyme, most treatments, medications needed to treat Lyme Disease, as they claim they're 'experimental'.
ALL DONATIONS ARE WELCOME & APPRECIATED FOR THE AUCTION! PLEASE CONTACT JENNIFER FAIRBANKS IF YOU WOULD LIKE TO HELP OR HAVE A ITEM TO DONATE @ 319-432-2290. * CASH DONATIONS CAN BE GIVEN AT ANY TIME AT ANY VERIDIAN CREDIT UNION LOCATION, THEY WILL PROVIDE A DONATION RECEIPT AND YOU CAN HAVE YOUR NAME AND SHORT MESSAGE ATTACHED THAT WILL SHOW UP ON THE THE MEDICAL ACCOUNT STATEMENT.
Please help Jenny, Morgan, Brexton & Sadie by keeping them in your Thoughts, Hearts & Prayers, and Financially...So they can get the treatment they need to get well, they truly are in need of any and all help no matter how small or large, they have a very long road ahead of them to go, many more far trips to the Specialist, a lot of medications and treatment...They are so grateful for every bit of help, every prayer and support of their Family, Friends and Community!
THANK YOU TO ALL WHO DONATE IN ANY WAY!!!