Angels Of Epilepsy June Newsletter
#AOENEWS, blogs, articles, events, & more!
Royal College of Pediatrics and Child Health starts next Epilepsy12 audit into children’s epilepsy services
The Royal College of Paediatrics and Child Health (RCPCH) is starting a new review into how effective children’s epilepsy services are. This is known as the Epilepsy12 audit and this is the third review of this kind.
Epilepsy12 is also known as the National Clinical Audit of Seizures and Epilepsies in Children and Young People. It looks at children’s epilepsy services at a particular point in time. It compares the services against 12 standards based on guidance by the National Institute for Health and Care Excellence (NICE).
Epilepsy12 looks at diagnosis and early treatment in children with epilepsy. It assesses things like how long it takes for children to receive services like scans and appointments. It also looks into areas such as how long it takes for a diagnosis to be made and whether children receive support from epilepsy specialist nurses (ESNs).
-Article is from: Epilepsy.org/UK
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Epileptic high school athlete at center of cannibis oil debate
WARNER ROBINS, Ga. - A high school athlete is at the center of a cannabis oil debate. He is one of 1,700 patients to sign up throughout the state for medical marijuana, but his high school says he can't bring it on campus
Channel 2’s Rikki Klaus spoke with CJ Harris, who is currently traveling with the Warner Robins High School basketball team.
He played at Lambert High in Suwannee over the weekend. His family credits medical cannabis oil for keeping CJ seizure-free the last several months.
"It's hard because you don't know if this is your last breath your child is taking. You just don't know," father Curtis Harris told Klaus.
-Article is from: WSBTV-Atlanta Rikki Klaus
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Brain's immune cells linked to Alzheimer's, Parkinson's, schizophrenia
David Gosselin and Dylan Skola in the Glass lab, together with Coufal and their collaborators, set out to characterize the molecular characteristics of microglia. They worked with neurosurgeons at UC San Diego to collect brain tissue from 19 patients, all of who were having brain surgery for epilepsy, a brain tumor or a stroke.
Scientists have, for the first time, characterized the molecular markers that make the brain's front lines of immune defense -- cells called microglia -- unique. In the process, they discovered further evidence that microglia may play roles in a variety of neurodegenerative and psychiatric illnesses, including Alzheimer's, Parkinson's and Huntington's diseases as well as schizophrenia, autism and depression.
"Microglia are the immune cells of the brain, but how they function in the human brain is not well understood," says Rusty Gage, professor in Salk's Laboratory of Genetics, the Vi and John Adler Chair for Research on Age-Related Neurodegenerative Disease, and a senior author of the new work. "Our work not only provides links to diseases but offers a jumping off point to better understand the basic biology of these cells."
Genes that have previously been linked to neurological diseases are turned on at higher levels in microglia compared to other brain cells, the team reported in Science on May 25, 2017. While the link between microglia and a number of disorders has been explored in the past, the new study offers a molecular basis for this connection.
Read more: https://www.sciencedaily.com/releases/2017/05/170531132645.htm
-Article is from: Science Daily.com
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Old Epilepsy Classification System Updated
Revises decades-old taxonomy to improve diagnosis, treatment, and research
Updates to a 1980s classification system of epilepsies and seizure types, which identify several types of seizure not captured in the previous version, are expected to allow more fully informed decisions regarding epilepsy diagnosis, treatment, and research, researchers reported.
Applying the right therapy often depends upon knowing the precise type of seizure, according to Robert Fisher, MD, PhD, of Stanford, the lead author of the seizure classification and instruction manual, which was published in Epilepsia.
"This more precise and transparent classification system gives words to patients and families to describe their seizures," Fisher told MedPage Today.
Treatment indications and approvals are predicated on specific seizure types, so it's important that classification "gracefully map to existing indications for drug or device usage," the researchers noted.
Read more: https://www.medpagetoday.com/neurology/seizures/63770
- Article is from: Med Page Today.org
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Congrats To The Class Of 2017 Epilepsy Champions
Epilepsy Survivor & Advocate, Jewel Gibson
Congrats to Jewel Gibson from Brooklyn, NY who just received a degree in Masters Of Education from LIU Brooklyn. Jewel is excited to be among the many educators helping children succeed and compete in our global and international economy.
AOE wishes Jewel much more success in the near future... Congrats!
- Instagram: @lol4epilepsy
Epilepsy Survivor & Advocate, Saaim Ali
Congrats to Saaim Ali from Buffalo, NY who is graduate from Williamsville East High School. She will be attending Niagara County Community College for communications and computer science for two years and then transferring to a four year college.
AOE wishes Saaim much more success in the near future....Congrats!
- Instagram: @epilepsyandmee
Epilepsy Survivor, Hunter Borger
Congrats to Hunter Boger from Manitoba, Canada who is a high school graduate and will be attending Dalhousie University in the Fall. She is also a proud epilepsy survivor.
AOE wishes Hunter much more success in the near future....Congrats!
- Instagram: @captain_shake
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All your questions about fidget spinners, answered
If you know a middle school kid, or a parent or teacher of one, chances are you've seen the simple little colorful device that's driving them all crazy lately.
It's called a fidget spinner, and even its name gives you a clue as to why some classrooms are banning them -- and some toy stores are selling out. The toy is the latest craze to sweep the globe, but it actually has a really interesting history as an educational tool.
Jaylon Rozier is a junior at Southeast Guilford High School in Greensboro, North Carolina. He says spinners are common in his school, and they're not much of a distraction.
"You can be really discreet about it," he says. "You can just take it out underneath your desk or use your non-dominant hand while you're working." Rozier noticed the devices a few months before they got popular, and his interest was piqued.
"I have epilepsy, and the medication I take to control it ratchets up my need to move around," he says.
So far, his teachers haven't said anything negative, and one even inquired about how she could get a spinner of her own.
Read more: http://www.cnn.com/2017/05/05/health/fidget-spinners-what-is-trnd/
- Article is from: CNN.com
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AOEat's Healthy On Pinterest
Ingredients
Vegan, Gluten free
Produce
- 2 cups Strawberries, frozen
- 1 Watermelon, mini seedless
Condiments
- 8 oz Lemon juice
Baking & Spices
- 3/4 cup Sugar
Frozen
- 2 cups Ice
- Follow Angels Of Epilepsy on Pinterest to see more! https://www.pinterest.com/aoepilepsy/aoeats-healthy-delicious-dishes-desserts/
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