ANGELS OF EPILEPSY
NOVEMBER - #AOEBLOGS, ARTICLES, EVENTS, & MORE!
In the almost ten years that I’ve lived with epilepsy, I have experienced thousands of seizures. Seizures in the comfort of my own home with my husband to protect me, seizures all alone with no way to cry out for help praying that when I wake, praying that I do wake, that I hadn’t injured myself in any way. Seizures at the grocery store, at the gym, during holiday gatherings and special events visiting family.
Dazed and confused, attempting to regain my bearings and my sight as vision is still a blurry smeared mess, I am able to make out the dead silence that surrounds me or muffled whispers among one another. Choosing to stand at least ten feet away from me, staring at me like I might explode or do something inhuman. I gather that those who aren’t used to witnessing someone having a seizure or who have never witnessed a seizure at all, are either extremely curious (we’re human, we’re curious by nature), terrified that a person is having this sort of reaction, or eager to want to help in any way that they can, unfazed.
*FOLLOW TIFFANY KAIROS AND THE EPILEPSY NETWORK ON ALL SOCIAL MEDIA
Thanks To Our Sponsors and Partners!
On behalf of Angels Of Epilepsy Foundation, we give much thanks to our sponsors and partners for your contribution for AOE's 10th Annual Awareness Celebration - "The Purple Hope Gala" that will take place on Saturday, November 3rd in Atlanta, GA!
Your generous support makes it possible for our organization to exist and make the epilepsy community feel loved and empowered.
*For more information about our sponsors, follow us on social media and visit www.angelsofepilepsy.org
Epilepsy, my life-threatening condition, is not your ‘undue burden’ - By: Kurt Eichenwald
The University of Notre Dame accepted James for this year’s freshman class. It was his first choice for an undergraduate education. No financial issues blocked him from going, no last-minute academic problems emerged during his final days of high school. But James is not attending Notre Dame; he is now a student at another top university. He was forced elsewhere because Notre Dame insisted that, to join the class, James (not his real name) had to increase his risk of dying.
James has epilepsy. When struck by convulsions, he falls unconscious for as much as three minutes, loses control of his bladder and bowels, and often vomits. Afterward, he remains disoriented for some time, unable to speak, with the right side of his body partially paralyzed. His condition is covered by the Americans with Disabilities Act, the 1990 anti-discrimination law that required Notre Dame — which did not know about James’s epilepsy when he was accepted — to accommodate needs presented by the seizures. A small modification was required to protect James’s life, but the school invoked an ADA loophole, proclaiming that the changes he sought imposed an “undue burden” on Notre Dame...
We're very excited to have Natalie Y. Beavers and her launch of the #iAmMe campaign. She came up with the idea for this campaign to encourage the many people who are looked at differently because of a medical condition or disease, a challenge that may have changed lives, being bullied, and even more. This campaign is for many to express themselves for who they are and to empower the many who are going through the pain and struggle.
Follow Angels Of Epilepsy on all social media to see more about the #iAmMe campaign and our upcoming seminars!
My name is Shannon O’Connor, I’m a 24 years old 4th grade Teacher’s Aide from the suburbs of Northern NJ. I grew up living a normal life but turns out after all, I’m not so normal. But who’s normal anyways! I was diagnosed with epilepsy in February 2018 but told by doctors I’ve had it my whole life. I’m super passionate about writing, keeping up a healthy life, and spending time with my family. Writing has become a way for me to reach the epilepsy community in a humorous relatable way through my blog, www.epilepsytrue.com. It has also been exactly what I’ve needed on my epilepsy journey. I’d like to be an advocate for people like me who suffer, yet thrive, from epilepsy and that’s what I intend to be through Epilepsy True.
READ HER LATEST BLOG:
*FOLLOW @EPILEPSYTRUE ON TWITTER
BLUEBERRY PINEAPPLE GALAXY SMOOTHIE
Vegetarian, Gluten free
∙ Serves 2
2 cups Banana, frozen slices
1 cup Dole blueberries, frozen
1 cup Dole pineapple chunks, frozen
5/8 cup Vanilla almond milk, unsweetened
Nuts & Seeds
1 tbsp Coconut, unsweetened
1/2 cup Vanilla greek yogurt
AOE UPCOMING EVENTS
November is Epilepsy Awareness Month! We need your support to help us continue to supply the needs for the many children, adults, patients, and families dealing with epilepsy. Make a donation to the AOE Care Fund and we thank you for your support!