TNT- August Newsletter

Together we train to beat cancer.

The Back to School Edition...

Alumni of the Month- Elaine Payne

Elaine joined Team In Training in 1999, completing the Bermuda Marathon. With no personal connection to the cause, Elaine was committed to helping others in the community through her fundraising endeavors. Overall, Elaine and her husband, Dave, have raised nearly $40,000 to support LLS. She has also supported the community and our youth through her teaching role at St. John Neumann School. This season Elaine is our super supportive Walk Coach for the Rock 'n' Roll Savannah Marathon and Half Marathon team.

LLS Advocacy- Pediatric Research Funding

Pediatric cancer is the leading cause of disease-related death for children, with approximately 13,500 children who will be diagnosed with cancer this year. While critical advances have been made in treatments for adult cancer, in 20 years the FDA has approved only two drugs for childhood cancer, and half of all chemotherapies used for children’s cancers are over 25 years old.

We are proud to announce that the H.R. 2019- Gabriella Miller Kids First Research Act was officially passed on April 3, 2014, in memory of 10 year old, Gabriella Miller who died of an inoperable brain tumor. Gabriella became a widely celebrated activist and successful fundraiser on behalf of childhood cancer awareness during her 11-month battle with brain cancer. In the weeks before her death, she urged lawmakers to take up the cause of pediatric cancer research. The Kids First Research Act was created to increase funding for pediatric medical research activities administered through the Common Fund at National Institutes of Health (NIH). This law will now provide much needed funding for crucial research projects, at a critical time in our nation’s progress in medical research. The total funding for research will come to $126 million over 10 years! In cancer research in particular, we are yielding unprecedented examples of precision based medicine that are fundamentally altering the way in which we will categorize and treat cancers going forward. These funds will help advance the important projects funded by the NIH in areas of high unmet medical need. Thanks to the many LLS advocates that took a stand! It is because of you that this bill was passed! To learn more about this bill and the incredible Gabriella Miller, click here:

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President Obama signing the Gabriella Miller Kids First Research Act into law on April 3, 2014 with Gabriella Miller's family at his side.

The Trish Greene Back to School Program

About 3,800 children under the age of 15 are diagnosed with leukemia each year. The Trish Greene* Back to School Program for Children with Cancer brings free information and materials to parents and educators from the local chapters of The Leukemia & Lymphoma Society (LLS). The program was developed to encourage communication among parents, young patients, healthcare professionals and school personnel to assure youngsters a smooth transition from active treatment to back to school.

Informative publications, DVDs, videos and programs help explain to classmates and teachers how kids with cancer feel, why they may look different, what type of treatment they've undergone and special needs they may have on their return. All materials are available through LLS's local chapters, including Georgia. If you are interested in learning more, feel free to contact our local Manager of Patient Access, Education, and Advocacy, Kim Nickels:

A special THANKS to our volunteers!

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Ronald McDonald House Meals

THANK YOU to these key Team In Training volunteers who made dinner for over 30 individuals currently staying at the Gatewood- Ronald McDonald House! Atlanta Ronald McDonald House Charities, Inc. (ARMHC) is a non-profit 501 (c) (3) organization dedicated to serving the needs of children, by providing temporary housing and support services to families of ill and injured children being treated at local hospitals. We are proud to partner with Atlanta Ronald McDonald House Charities and provide this family meal service as a Team!

How to Make Informed Choices about Standard Care and Clinical Trials

Tuesday, Aug. 12th, 11:30am-1:30pm

Cancer Support Community Atlanta, 5775 Peachtree Dunwoody Road, Suite C-225, Atlanta, GA 30325

Speaker: Stacey Brown, CCRP, Clinical Research and Data Supervisor

Organization/Affiliation: The Blood and Marrow Transplant Program at Northside Hospital

With a Patient Panel Discussion

Pre-registration for this free program is required. Please contact Kim Nickels at 404-720-7807 or to register for the program.

Topics covered:

· Steps to take to help you make treatment decisions

· Questions to ask about benefits and risks of standard treatments and treatments under study in clinical trials

· How new blood cancer treatments are developed and approved

· How to sort out the myths from the facts about clinical trials

· How to locate clinical trials that may be right for you

· How The Leukemia & Lymphoma Society can help

Complimentary lunch will be served.