TNT- August Newsletter
Together we train to beat cancer.
The Back to School Edition...
Alumni of the Month- Elaine Payne
LLS Advocacy- Pediatric Research Funding
Pediatric cancer is the leading cause of disease-related death for children, with approximately 13,500 children who will be diagnosed with cancer this year. While critical advances have been made in treatments for adult cancer, in 20 years the FDA has approved only two drugs for childhood cancer, and half of all chemotherapies used for children’s cancers are over 25 years old.
We are proud to announce that the H.R. 2019- Gabriella Miller Kids First Research Act was officially passed on April 3, 2014, in memory of 10 year old, Gabriella Miller who died of an inoperable brain tumor. Gabriella became a widely celebrated activist and successful fundraiser on behalf of childhood cancer awareness during her 11-month battle with brain cancer. In the weeks before her death, she urged lawmakers to take up the cause of pediatric cancer research. The Kids First Research Act was created to increase funding for pediatric medical research activities administered through the Common Fund at National Institutes of Health (NIH). This law will now provide much needed funding for crucial research projects, at a critical time in our nation’s progress in medical research. The total funding for research will come to $126 million over 10 years! In cancer research in particular, we are yielding unprecedented examples of precision based medicine that are fundamentally altering the way in which we will categorize and treat cancers going forward. These funds will help advance the important projects funded by the NIH in areas of high unmet medical need. Thanks to the many LLS advocates that took a stand! It is because of you that this bill was passed! To learn more about this bill and the incredible Gabriella Miller, click here: http://tinyurl.com/kidsfirstresearchact.
President Obama signing the Gabriella Miller Kids First Research Act into law on April 3, 2014 with Gabriella Miller's family at his side.
The Trish Greene Back to School Program
Informative publications, DVDs, videos and programs help explain to classmates and teachers how kids with cancer feel, why they may look different, what type of treatment they've undergone and special needs they may have on their return. All materials are available through LLS's local chapters, including Georgia. If you are interested in learning more, feel free to contact our local Manager of Patient Access, Education, and Advocacy, Kim Nickels: Kim.Nickels@lls.org.
A special THANKS to our volunteers!
Ronald McDonald House Meals
How to Make Informed Choices about Standard Care and Clinical Trials
Tuesday, Aug. 12th, 11:30am-1:30pm
Cancer Support Community Atlanta, 5775 Peachtree Dunwoody Road, Suite C-225, Atlanta, GA 30325
Speaker: Stacey Brown, CCRP, Clinical Research and Data Supervisor
Organization/Affiliation: The Blood and Marrow Transplant Program at Northside Hospital
With a Patient Panel Discussion
Pre-registration for this free program is required. Please contact Kim Nickels at 404-720-7807 or firstname.lastname@example.org to register for the program.
· Steps to take to help you make treatment decisions
· Questions to ask about benefits and risks of standard treatments and treatments under study in clinical trials
· How new blood cancer treatments are developed and approved
· How to sort out the myths from the facts about clinical trials
· How to locate clinical trials that may be right for you
· How The Leukemia & Lymphoma Society can help
Complimentary lunch will be served.