Apert Syndrome
Christina O'Neill
Resources
General Resources:
Below is a list of websites and agencies/associations that can be referenced to gain more knowledge and an understanding of Apert Syndrome. These resources would be helpful for the family, caregiver(s), teachers, and clinicians working with a child with this disorder.
- http://www.apert.org/apert.htm
- http://www.craniofacial.net/syndromes-apert
- Children’s Hospital of Los Angeles
- http://www.ccakids.com/apert-syndrome.html
- http://ghr.nlm.nih.gov/condition/apert-syndrome
- http://www.specialchild.com/archives/dz-020.html
- http://www.ccakids.com/assets/syndromebk_apert.pdf
- http://www.gillettechildrens.org/conditions-and-care/apert-syndrome/
- FACES: The National Craniofacial Association
- Apert International, Inc.
- Children's Craniofacial Association -- www.ccakids.com
- Seattle Children's Hospital - http://www.seattlechildrens.org/medical-conditions/chromosomal-genetic-conditions/apert-syndrome/
Resources for Family/Caregiver
- Children with Facial Difference: A Parent's Guide (link below). This is a guide for parents that provides detailed information regarding a child with facial differences and their self-esteem. It provides suggestions that can be used to help build a child's self-esteem and self-esteem in school.
- http://myface.org/wp-content/uploads/2014/08/Self-Esteem-Guide.pdf
Resources for the SLP
http://www.smartspeechtherapy.com/spotlight-on-syndromes-an-slps-perspective-on-apert-syndrome/
- Therapy Ideas - Pinterest and Teachers Pay Teachers Website