Angels Of Epilepsy Newsletter
#AOENEWS, Articles, Blogs, & More!
SAVE THE DATE: MAY 6 - Talk About It For Epilepsy
Mark your calendars for this upcoming event on May 6, the “TALK ABOUT IT for Epilepsy” Netathon, presented by Sunovion, to spread awareness and raise funds for epilepsy.
This unique event, hosted by Greg Grunberg and centered around the epilepsy community, drew over 835,000 viewers last year. It will feature musical performances and interviews with stars from stage, screen, and music on why talking about epilepsy is so important. The event will also include epilepsy and seizure experts talking about key epilepsy-related topics.
If you are looking for more information on the featured celebrities, bands and physicians, or how to tune in, check out the website, www.epilepsy.com/Hollywood. The event can also be viewed on www.talkaboutit.org and www.CBSlocal.com/epilepsy
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BROOKHAVEN, Ga. - Cannabis oil has become part of Georgia mom Julianne Martin's new routine.
Three times a day, the Brookhaven mother of two draws a small amount of low-THC oil into a syringe and then brings it to her 4-year old son Alex, who knows what to do.
He opens his mouth, and she squirts the oil blend "Haleigh's Hope," shipped to Georgia from Colorado, into his mouth. Alex has been diagnosed with mitochondrial disease, autism and epilepsy. When he was about 15 months old, he began having seizures, which medication initially helped control. "But, ultimately, in June, we hit a roadblock," says Julianne Martin. The seizures came back. "He was maxed out on his medications, says Martin. "He was still seizing. And as he was seizing, he was becoming more fearful. He was beginning to recognize he was seizing."
Read more: http://www.fox5atlanta.com/health/fox-medical-team/243270519-story
-Article from: FOX5 News Atlanta
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Meet Epilepsy Survivor & Advocate, Mr. Mel Riebe Jr.
I was 8 years old when I was diagnosed with epilepsy. I was scared when I found out that I had epilepsy. I did not want to think about it but I went to college and everything changed. I got my education at the time and I was with the Abilities Network here in Baltimore MD. I had counselors come to my house and help me with my goals.
I have great support with my wife, my daughter, her boyfriend, my grand kids, and my co-workers now. I turn fifty this year and I see things different how people respect each other. When I go to my doctors for my epilepsy, I surprise him a lot, it's getting real crazy, and that's why I'm helping people with their epilepsy and how to live with it daily.
I just want people not to be scared of a person who has seizures. We should educate them. Since I became a Purple Day Ambassador for Baltimore Maryland, I go to support groups, special events, and schools to educate the people about epilepsy. And it's pretty cool what I'm doing and how I'm spreading the word out. I've been on a local TV and YouTube. Now I'm going to do videos and post them on YouTube.
Some people don't know this is a deadly condition that does not have a cure at all. Sometimes this journey have brick walls. You just have to break those walls to get to your dreams. Don't let nobody get in your way of your dreams. Sometimes it's like a big roller coaster ride. I see sometimes people think they are doctors, like pushing their medication up or do not go to get the right medication. And it hurts me real bad. My journey is so flat. It's like driving in a Vegas and winning the biggest jackpot you ever seen. I know went to be really careful when I'm working in the heat.
Best thing about this journey is I taught myself how to sign for the deaf and taught myself how to play the guitar. I have a partner who works with he's like a big brother to me. He makes sure that I 'm ok. But my journey continues until I get the word around the world and they know who I am and making a powerful statement about epilepsy!
I spread the word about epilepsy everyday. I'm currently writing a book about how I live with epilepsy. The book will be called, "Living With Epilepsy" and it's coming out this year.
Mel Reibe
Epilepsy Survivor, writer, & advocate
Baltimore, MD
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Tiny, 3-D clusters of human brain cells grown in a petri dish are providing hints about the origins of disorders like autism and epilepsy.
An experiment using these cell clusters — which are only about the size of the head of a pin — found that a genetic mutation associated with both autism and epilepsy kept developing cells from migrating normally from one cluster of brain cells to another, researchers report in the journal Nature.
"They were sort of left behind," says Dr. Sergiu Pasca, an assistant professor of psychiatry and behavioral sciences at Stanford. And that type of delay could be enough to disrupt the precise timing required for an actual brain to develop normally, he says.
-Article from: NPR.org
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Well-timed pulses from electrodes implanted in the brain can enhance memory in some people, scientists reported on Thursday, in the most rigorous demonstration to date of how a pacemaker-like approach might help reduce symptoms of dementia, head injuries and other conditions.
The report is the result of decades of work decoding brain signals, helped along in recent years by large Department of Defense grants intended to develop novel treatments for people with traumatic brain injuries, a signature wound of the Iraq and Afghanistan wars. The research, led by a team at the University of Pennsylvania, is published in the journal Current Biology.
Previous attempts to stimulate human memory with implanted electrodes had produced mixed results: Some experiments seemed to sharpen memory, but others muddled it. The new paper resolves this confusion by demonstrating that the timing of the stimulation is crucial.
Read more: https://www.nytimes.com/2017/04/20/health/brain-memory-dementia-epilepsy-treatments.html?_r=0
- Article from: NY Times.com
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BOSTON — The American Academy of Neurology and the American Epilepsy Society have released a new guideline1 on sudden unexpected death in epilepsy (SUDEP), highlighting the incidence, risk factors, and preventive approaches for this poorly understood and catastrophic risk of epilepsy.
According to guideline author Cynthia Harden, MD, of Mount Sinai Health System in New York, it is critical for health care professionals to communicate the occurrence rate and specific risk factors for SUDEP to persons and families affected by epilepsy. “Our guideline brings clarity to the discussion, giving health care providers practical information they can use to help people with epilepsy reduce their risk,” Dr Harden said in a press release.2
The guideline, titled “Practice guideline: Sudden unexpected death in epilepsy incidence rates and risk factors,” was presented at the 2017 American Academy of Neurology Annual Meeting held April 22-28 in Boston, Massachusetts and published simultaneously in the journal Neurology.
-Article from: Neurology Advisor.com
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Looking for a home in Atlanta?
If you're looking for a home in the Atlanta area, contact realtor Shatima Tankson at Keller Williams in Buckhead at 404-809-6350 or office at 404-604-3800.
Angels Of Epilepsy thanks Ms. Tankson for her support for Epilepsy Awareness!
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- 2 tsp Bacon bits
Produce
- 1/2 tsp Dill, dried
- 2 cups Spinach, packed
Refrigerated
- 1 Lg egg
Baking & Spices
- 1 Salt and pepper
Oils & Vinegars
- 1 tbsp Olive oil
Bread & Baked Goods
- 1 sheet Puff pastry, frozen
Dairy
- 1 tbsp Butter
- 4 oz Cream cheese
- 3/4 cup Feta
Get cooking instructions on our Pinterest or click here: https://www.pinterest.com/pin/443041682077393681/
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#EPILEPSYLIVESMATTER
DO YOU KNOW ABOUT THE SEIZURE DIARY?
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Angels Of Epilepsy
Email: angelsofepilepsy@gmail.com
Website: www.aoepilepsy.org
Phone: 678-239-4193
Facebook: https://www.facebook.com/aoepilepsy/
Twitter: @AOEpilepsy