Daily life with LQTS and Autism
How can these diseases change the way you live?
Basics of Long QT Syndrome(LQTS)
Long QT syndrome is a heart rhythm disorder that may cause rapid, uncontrolled heart beats that in some cases will lead to feinting, seizures or cardiac arrest. These arrhythmia's can be caused by the shock of a cold pool, or even an alarm ringing suddenly. The SADS foundation is helping to support families with hereditary heart rhythm disorders.
Autism and Its Basic Characteristics
Autism Spectrum Disorder (ASD) is a group of disorders that affect brain development. This disorder exists in varying degrees of severity, and characteristics including difficulty with social interaction and communication. Another autistic characteristic is repeating things like sounds and having their daily routine the same.
Vocabulary Terms
AED's
(Automatic External Defibrillator) A potable device that monitors the heart rhythm, and can send an electrical shock to the heart to set the heart back into a regular rhythm.
Early signs
It is important for parents to learn the early sign of ASD
- No big smiles or other warm, joyful expressions by six months or thereafter
- No back-and-forth sharing of sounds, smiles or other facial expressions by nine months
- No babbling by 12 months
- No back-and-forth gestures such as pointing, showing, reaching or waving by 12 months
- No words by 16 months
- No meaningful, two-word phrases (not including imitating or repeating) by 24 months
- Any loss of speech, babbling or social skills at any age
Pace-maker
This piece of equipment is installed into the body to keep the pulse steady and alert with a shock(Small AED) beeping sound if the heart takes on an irregular rhythm.
Handling Autism Daily
Daily life for people with Autism and their families can be very similar day to day. Children with Autism like to be on a routine and sometimes depend on it. So if they get out of their routine they become overwhelmed and can't handle it. It almost may be difficult to discipline children with Autism, so in order to teach these children lessons they need to be told several times and sometimes they need a family member to communicate the problem with the child on a one on one basis.
Brain Balance Center Of West Springfield
Website: brainbalancecenters.com
Location: 1472 Riverdale Street, West Springfield, MA, United States
Phone: (413)-737-5437
Demographics on Autism
- 1 in every 68 children are identified with ASD
- ASD is reported in all racial and ethnic groups
- ASD is five times more common in boys ( 1 in 42) than it is in girls (1 in 189)
- Children have a higher risk of having ASD if their parents are older or they are born prematurely
- Autism costs a family about 60,000 dollars a year
The Difficulties of Long QT Everyday Life
- Long QT syndrome is a genetic disease.
- The QT stands for the time between the wave length, in which it starts at Q and ends at T. The QT interval is the depolarization and the repolarization of the ventricles.
- 30% of children become aware of their disorder after they have experienced sudden cardiac arrest.
- Patients with LQTS must not exert themselves physically or physically or they could send themselves into a cardiac arrest.
Work-Cited
- http://www.cdc.gov/ncbddd/autism/data.html
- http://www.brainbalancecenters.com/locations/west-springfield/?_vsrefdom=googleppc&gclid=CNnlltmvvMQCFSRo7AodJnQAWw
- http://autism.lovetoknow.com/Everyday_Life_with_Autism
- https://www.autismspeaks.org/science/science-news/ten-important-things-we-know-about-autism-today-%E2%80%93-we-didn%E2%80%99t-know-year-ago
- http://www.nhlbi.nih.gov/health/health-topics/topics/qt/
- http://www.research.chop.edu/programs/lqts/clinical.php