Ava's miraculous life journey, living with Spina Bifida
Myelomeningocele (Meningomyelocele), also called Spina Bifida Cystica
This is the most severe form of Spina Bifida. It happens when parts of the spinal cord and nerves come through the open part of the spine. It causes nerve damage and other disabilities. Seventy to ninety percent of children with this condition also have too much fluid on their brains. This happens because fluid that protects the brain and spinal cord is unable to drain like it should. The fluid builds up, causing pressure and swelling.
Our daughter will spend 2 - 3 weeks in the hospital recovering from 2 different surgeries. The first to repair the open wound on her lower back where the spinal fluid was leaking out. The second surgery was to place a shunt to alleviate the build up of spinal fluid in her head and lower back.
Ava is an awesome fighter that has shown so much resilience and strength. She has only been on earth for a brief period of time, yet has given so many people hope. She is loved by thousands of friends and family. We appreciate all the thoughts and prayers.