Hope for Sienna

Join in the fight against Cystic Fibrosis

On May 17, 2014 my family and I will be participating in the Cystic Fibrosis Foundation's Great Strides event. We will be joining the Flamino family's team and our goal is to raise 10,000 by this date. Baby Sienna Flamino was diagnosed with Cystic Fibrosis at 3 weeks old. She is the sweetest little girl and I really want to help achieve our team goal to provide her hope for the future.


Therefore, from now until May 17th I will be donating 100% of my commissions from the purchase of the Stella & Dot "Hope Necklace- Sterling Silver" ($39 +tax/shipping) to Great Strides (www.fightfc.cff.org) & help aid in Cystic Fibrosis research. In addition, I will also be donating the profits of any additional items purchased WITH the Hope Necklace.

(http://www.stelladot.com/sites/jennywilken) search "Hope Necklace" on top right search bar.


I truly hope you will help us achieve our team goal. You can also donate directly to our team through this link: http://fightcf.cff.org/site/TR/GreatStrides/12_Carolinas_Charlotte?team_id=14249&pg=team&fr_id=1970

More about Sienna and her family-

For our family, the joy of having a newborn baby girl was cut short in June 2013, when we received the devastating news that our three week old daughter, Sienna, had a genetic disease called Cystic Fibrosis. Cystic Fibrosis is a progressive disease in which a defective protein causes mucus to build up in the body. This results in chronic lung infections and issues with the GI system. Over 30,000 Americans fight this disease daily and need your support in finding a cure! Medicine and therapies have come a long way to prolong the life of those battling this disease, but it's not enough. Children and teens who spend hours each day taking pills, doing breathing treatments, and on antibiotics to fight infections, are still losing their battle with CF. At seven months old, our little girl has only begun preventative treatments. Each day, we spend 30 minutes doing Chest Physiotherapy (CPT) to dislodge any mucus that may be accumulating in her lungs. Each day, we add salt to her bottles to replace the salt that is leaving her body. Sienna is an incredibly sweet and adorable little girl and we greatly appreciate you helping to find a cure and new treatments.

To follow Sienna's journey visit her mom's blog http://southernlivingwithsienna.blogspot.com/