TOGETHER WE RAISE AWARENESS
In Honor of Logan Burniche
Logan is a 9 year old Classical PKU patient. PKU is a rare genetic metabolic disorder that is currently not curable. An infant is born without the ability to properly break down an amino acid called phenylalanine. It is the building block of proteins which is obtained through diet. Without special diet, metabolic formula and close monitoring, the body can cause intellectual disabilities, mental retardation, neurological problems and memory loss.
Logan has been being treated at Albany Medical Children's hospital since birth. We have been blessed by the support of the Children's Hospital, our family, friends and charitable organizations over the years as they have supported us to the fullest by helping to off-setting medical costs, giving us emotional support and most of all helping us make sure that Logan stays healthy.
Now is the time to give back. We have teamed up with the National PKU Alliance. They work to improve the lives of the families and individuals associated with PKU through research and support all while seeking a cure. Families are in need of all types of support. Our goal as a team is to help raise awareness within our community. It is so important that our community know the effects and preventative measures that can help PKU patients live a happy and healthy life.
We are truly confident that with your love and support this benefit will be a huge success!!! Join us!
October 17, 2013 6-9 pm
91 Broad Street
Waterford, NY 12188
$20 per person includes appetizer buffet, PKU buffet, 2 drink tickets & entertainment
Raffles & 50/50 will also be available
All proceeds will benefit the National PKU Alliance & local families with PKU!
Please contact me if you would like to make a donation:
Chrissy Burniche @ (518)857-2005 or PKUMOM1@AOL.COM