#AOENEWS - December '20

Happy Holidays! - Angels Of Epilepsy News, Events, & More!

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TikTok is adding a new feature that will help people who have epilepsy to avoid potentially dangerous photosensitive content. The short video platform already warns creators if their uploads contain effects that could trigger photosensitive epilepsy, but now anyone who encounters an example in their feed will get an alert that allows them to opt out of viewing such content in the future. There’ll also be a toggle in the app’s accessibility settings.
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“There are 3.4 million people in United States living with epilepsy and people don’t know that because they’re such a stigma around epilepsy and there’s so much fear around seizures,” said Rebecca Moreau, assistant director of Epilepsy Foundation Texas. "It's always so great to see everybody come together and know that turning up purple really does light up the lives of our families that live in Dallas."

Dec. 8th @ 8pm EST

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Enjoy AOE's "Let's Talk Epilepsy" with entertainer and survivor, Tamara "Taj" George on Tuesday, December 8th at 8pm EST - 5pm PST.


Hear Taj speak about her diagnosis with epilepsy, her life challenges as an entertainer, and how she proceeds with her life journey. You will also have an opportunity to join in on this discussion with some Q&A.

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Today, the way a physician determines how many seizures a person with epilepsy has had is through the patient's own record of seizure activity. Despite all the technological advances in devices monitoring the human body, a patient's seizure diary, as it is often called, remains the only means to record and count epileptic seizures outside the clinic. Any insights that such a diary can provide on the effects of medication, seizure frequency or seizure triggers depend on the reliability and detail of the patient's reporting. Even accurate recognition of seizures is a problem since about half of seizures are not known to the patient.
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CLICK HERE

CLICK HERE FOR MORE DETAILS, INFORMATION, AND TO GET YOURS!

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Whipped Shortbread Cookies

Baking & Spices

  • 1 1/2 cups All-purpose flour

  • 1/4 cup Cornstarch

  • 1/2 cup Powdered sugar

  • 1/4 tsp Salt

  • 1 Sprinkles

  • 1 tsp Vanilla extract


Dairy

  • 1 cup Butter, unsalted

Personal Stories During National Epilepsy Awareness Month

Personal Stories During National Epilepsy Awareness Month

We would like to give much thanks to survivor & filmmaker, Ingrid Pfau, for having Angels Of Epilepsy's founder & advocate, Natalie Y. Beavers, participate in this amazing video to share her journey along with many other epilepsy survivors!