Cystic Fibrosis

Declan DeLong

What is Cystic Fibrosis?

Cystic Fibrosis is a genetic disorder that you are born with. The full definition is a gene mutation which is a a life-threatening disease that causes persistent lung infections and progressively limits the ability to breath. It can clog Organ and major airways leading to dangerous infections. It can result in death if a major organ or airway is clogged. It was found in 1983 by Dr. Dorothy Andersen.

Symptoms of Cystic Fibrosis

People have experienced pain in the abdomen, burning in chest, coughing (which is chronic and with blood) and phlegm. It can make people have delayed puberty and slow growth. It can also make people have fatigue and inability to exercise.
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Fun Facts

Cystic Fibrosis effects chromosome 7 and is a recessive trait. If the patent has it the child is more likely to have it but since it is a gene mutation there is always a chance of you getting it. It is a disorder that you are born with is so you can not get it if you are not born with it.

Are there any tests to see if my child or I have Cystic Fibrosis?

There are tests to see if your child or maybe even if you have Cystic Fibrosis. There is a test that only uses your sweat, it is painless and does not hurt. They take your sweat and see if you have unusual amounts of salt in your sweat. If there is, you most likely have Cystic Fibrosis. There is also a test for new born infants. This test is just like any other blood drawn test, They take some of the new born babies blood and test it for Cystic Fibrosis. While there is a test like this for adults it is not as accurate.
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Is there anyway to prevent this disease?

No, there is no way to prevent this disease, or a cure. Although there are many ways to still live a healthy and strong life. There are different therapy's that will help with this disease from getting worse or even causing death to you. some of the good therapies to go to are a respiratory therapist or even a digestive therapist.

Are there any organizations that i can join to help this disease?

Although this disease is not known very well through out the people of the United States, there are two major groups who are trying to cure and help those with Cystic Fibrosis. One major group is called the CF-therapy, this group helps kids with Cystic Fibrosis get therapy and medicine to help this disease. The other major group called Causeway.org is a lab that tries to find cures for this disease.