We Run for Rett
Jon and Nikki are running to raise money for Rett Syndrome!
Why We Run
The Girls We Love
Rett Syndrome is a debilitating disorder that affects the motor systems of the body. There are many symptoms, which include Apraxia (the inability to control the muscles used for speech), seizures, loss of purposeful hand movements (ie. grasp used to pick up small objects is replaced by repetitive hand motions like hand wringing or constant placement of hands in mouth), rocking, problems with digestion, and the list goes on and on. Although most children survive to adulthood, many are wheelchair-bound, rely on feeding tubes, are unable to communicate and require total, lifelong care.
There is promising research being done but the Rett Syndrome Research Trust needs more help. That is where you come in! Please donate whatever you can to help them find a cure for this terrible syndrome that has taken Teagan's ability to live a normal life.
Help us out