We Run for Rett

Jon and Nikki are running to raise money for Rett Syndrome!

Why We Run

We have been moved to help in the fight against Rett Syndrome after hearing the stories about how it afflicts young girls. Knowing Teagan Greenlaw and Eva Fini has made it personal to us. We want to run the Disney Princess 1/2 Marathon in order to raise money to defeat Rett and find a solution for all of these girls. We partner with our friends and hope that you can partner with us as well.

The Girls We Love

About Rett

Rett Syndrome is a debilitating disorder that affects the motor systems of the body. There are many symptoms, which include Apraxia (the inability to control the muscles used for speech), seizures, loss of purposeful hand movements (ie. grasp used to pick up small objects is replaced by repetitive hand motions like hand wringing or constant placement of hands in mouth), rocking, problems with digestion, and the list goes on and on. Although most children survive to adulthood, many are wheelchair-bound, rely on feeding tubes, are unable to communicate and require total, lifelong care.

There is promising research being done but the Rett Syndrome Research Trust needs more help. That is where you come in! Please donate whatever you can to help them find a cure for this terrible syndrome that has taken Teagan's ability to live a normal life.

About Us

Jon and Nikki Redeker will fly to Orlando, Florida to run 13.1 miles in the Disney Princess Half Marathon to raise money to Girl Power 2 Cure, Inc. to help cure Rett Syndrome.

Help us out



Rett Syndrome

Disney Princess 1/2 Marahton

Sunday, Feb. 24th, 5am

1503 Live Oak Ln

Orlando, FL