Marfran Syndrome
BY: Morgan & Jaylen
Description:
Marfran Syndrome is a disorder that affects your connective tissue in your body which provides the frame work and support your body needs. This disorder is autosomal recessive.
Symptoms:
Marfran syndrome affects primarily your bones, ligaments,heart and blood vessels, eyes,lungs, and the skin. With this disorder you can have tears in your inner walls, or a rupture in one of your heart valves. You can usually tell when someone has Marfran Syndrome when they're very tall and slender with a narrow face.
Treatments:
Marfran Syndrome cannot be cured and with doctors help you can still live a long full life. There aren't many things You can do to treat Marfan Syndrome but you can get a specific surgery depending on your symptoms.
Affects:
Marfran syndrome affects 1/5000 people. Its not specific on what gender it is commonly found in and it can appear at any age. With Marfran Syndrome you have to..
- avoid jobs with great amounts of physical activity
-No contact sports
-No heavy lifting
Who is Helping?
Chris Malaisire and patrick M. McCarthy mastered and offered the most advanced surgical techniques such as valve- sparing aortic root surgery and others that help to correct cardiovascular abnormalities.