What is Cystic Fibrosis?

Cystic Fibrosis is a genetic disorder that affects the lungs, pancreas, liver, kidneys, and intestine. Cystic Fibrosis is a life threatening disease and it progressively limits a person's ability to breathe.

Does CF affect someone's life expectancy?

Cystic Fibrosis does affect someone's life expectancy. A person with Cystic Fibrosis should live in between 30 and 50 years. People with CF live longer than they used to because of specialized care and different treatments.
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This is an X-ray of someone's lungs who has CF

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This is an x-ray of a healthy person's lungs

Can we stop Cystic Fibrosis?

As of now, there is no cure for Cystic fibrosis. Although you can help Cystic Fibrosis by going through daily physical therapy tests.

What diagnostic tests are preformed to determine if an individual has this disorder?

There are 6 tests that are preformed.

1 Newborn screening

2 Sweat test

3 Prenatal screening

4 Chest X-ray

5 Lung function tests

6 CF carrier testing

Are there any organizations to help individuals with Cystic Fibrosis?

Association Gregory Lemarchal

Cystic Fibrosis Trust

Cystic Fibrosis Help Organization

Emily's Entourage

Help For CF

Cystic Life

Boomer Esiason Foundation

CF Worldwide

Rock CF Foundation

Mauli Ola Foundation

Live For A Cure

Is CF common?

Cystic Fibrosis is an extremely common disease. It is most common in Jews, then European-Americans, then African Americans, then Asian-Americans. If you have one CF gene and one non-CF gene, you will be a carrier of CF but you will not have CF. CF is a recessive trait.

Are there any interesting facts about CF?

It was first recognized by Dr. Dorothy Hansine Andersen in 1938. It is in the genetic category Chromosomal Abnormalities.

Are there any side effects of Cystic Fibrosis?

Yes, CF can cause a light taste of salt in the skin. CF causes shortness of breath,. Digestive issues, and heavy wheezing. Male infertility is also an effect of CF. People experiencing CF also may be effected by minimal growth an weight gain. Phlegm and infections are also possible side effects with CF.