LOCAL EVENTS, EDUCATION, NEWS and ADVOCACY
January 3, 2016
Happy New Year Everyone!
Looking forward to a year full of enriching, exciting and fun filled gathering for the DSACNJ community. As you all know, DSACNJ is a nonprofit organization which strives to provide support, education, advocacy and enrichment opportunities to people with Down Syndrome and their loved ones. Nearly all of the events we provide throughout the year are free of charge to all our members. Please help us continue to provide the services we offer and expand our services as intended. Invite your friends, families, therapist, teachers, coaches and Join us at our annual fundraiser which also happens to be our biggest and best event of the year in celebration of World Down Syndrome Day!
Saturday March 12, 2016 Come Celebrate our 2nd Annual ROCK YOUR SOCKS OFF Dance Party and Fundraiser at the Cranbury Inn (see details below).
IF YOU ARE PART OF OR HAVE CONNECTIONS WITH A BUSINESS WHICH MAY WISH TO SPONSOR OUR WOLD DOWN SYNDROME DAY EVENT PLEASE LET US KNOW SO THAT WE CAN FOWARD YOU A SPONSORSHIP FORM.
You can also help support the Down Syndrome Association of Central New Jersey by adding our group to your amazonsmile shopping settings on https://smile.amazon.com/.
HAPPY NEW YEAR!
May 2016 be filled with health, happiness, and good fortune for all our families!
FACEBOOK GROUP STARTED
Please join our group
REGISTER FOR ROCK YOUR SOCKS OFF 2016
ROCK YOUR SOCKS OFF DANCE-OFF CELEBRATING WORLD DOWN SYNDROME DAY
Saturday, March 12th, 1-4pm
21 South Main Street
THIS DANCE PROVIDES INDIVIDUALS WITH DOWN SYNDROME THE OPPORTUNITY TO CELEBRATE THEIR ACHIEVEMENTS WITHIN THEIR DAILY LIVES AND IN OUR COMMUNITIES.
INVITE AND BRING YOUR FRIENDS, NEIGHBORS, RELATIVES, THERAPISTS, CLASSMATES, TEACHERS AND COACHES.
DJ BRETT GASH WILL LEAD THE PARTY. FOOD AND REFRESHMENTS WILL BE SERVED.
EXCITING SILENT AUCTION WITH GREAT PRIZES INCLUDING DISNEY THEME PARK PASSES, GREAT WOLF LODGE STAY, AMERICAN DOLL, PHILADELPHIA ZOO PASSES AND MANY MORE!
INDIVIDUALS WITH DOWN SYNDROME ARE FREE. DANCERS 3 AND YOUNGER ARE FREE.
$21.00 FOR ALL OTHERS.
DO YOU KNOW A BUSINESS THAT MAY WANT TO SPONSOR US? PLEASE BE AN ADVOCATE FOR US AND EMAIL FOR FUNDRAISING FLYERS FOR THE EVENT. WE CAN USE YOUR HELP FINDING SPONSORS!
Can't Attend? Register as a virtual dancer to receive a t-shirt
A LOOK AHEAD
Events in the works
Over the next several weeks we will be finalizing details for some upcoming events. Currently in the works are planning for the following. We will update you will details in the near future!
Plans for future educational events?
Financial Planning for children with Special Needs
Question and Answer Forum with Down Syndrome Expert
Mindfulness and Stress Reduction for Caregivers
Plans for Social gatherings?
Moms Night out
Dads Night Out
Toddler Time at Motion Gymnastics
Teen Night Out
On the Medical Advocacy Front
Reaching out to the medical community
We plan to attend a regional obstetric conference in the spring to spread the word. We also plan to do a mailing of information packets including the guidelines on the delivery of diagnosis, support information, information about options such as adoption, and a First call Program information sheet to all obstetric Hospitals in the state as well as obstetric groups. The First Call program is a release form that physicians can have the patient sign to allow us to call them and support them at the vulnerable time following the receipt of the diagnosis. We hope this effort will improve new parents early integration into a support group where they can receive the most accurate information about what they can expect with regards to raising a child with Down Syndrome.
Our message is critical especially with the widespread availability of non-invasive prenatal testing for trisomy 21. The Down Syndrome Association has received a grant to focus on these efforts.
ADDED PERK FOR OUR MEMBERS
Discount to Great Wolf Lodge for DSACNJ members
Just in time for the winter holiday season DSACNJ has a special offer from Great WolfLodge. 20% off lowest rates for all our members. Use the Corporate Code: DOWN086A
You can book online athttp://www.greatwolf.com/poconos or by calling 800-768-WOLF(9653).
Upon check-in if requested a copy of our newsletter is sufficient for proof of membership.
Disabilities Allies Events
Kids Team Builder, Bowling and Mountaineer Day approaching
Bowling Team Builders (ages 15 and older)
(January 9th and January 23rd)
You must register for our Bowling Team Builder's event if you are interested in being a mentor or participant by following the link below. Register for one or both!! You can also follow the links to find out more information. (*Important- If you are trying to register on a work computer or on a cellphone the registration may be blocked. Please try registering from a computer in your home.)
Register for Jan 9th here
Register for Jan 23rd here
Bowling Team Builders will take place on both days from 10am to 1:15pm at Majestic Lanes Bowling Alley and is for young adults.
The address of the event is 525 Us Highway 9 N, Hopelawn, NJ 08861-1551. Hopelawn is just south of Woodbridge. Meet us at the party room when you arrive. The event is completely accessible. You can park at the Bowling Alley for Free. Click on the link below to register and for information.
Team Builders for kids (ages 6 and up - Also looking for Young Adult Mentors)
January 10th, January 24th, Feb 7th, Feb 21st and March 6th
You must register for Team Builders for Kids if you are interested in being a mentor or a participant by following the link below. You can also follow the link to find out more information. (*Important- If you are trying to register on a work computer or on a cellphone the registration may be blocked. Please try registering from a computer in your home.)
The program will last for five sessions. You don’t have to sign up for all the sessions if you don’t want to. It will occur on the 2nd and 4th Sunday of the month. The Dates are January 10th, January 24th, Feb 7th, Feb 21st and March 6th.
There are three different programs depending on your age group
1. 6-8 years old will meet from 10:30am to 11:30am
2. 9-11 years old will meet from 11:30am to 12:30pm
3. 12-15 years old will meet from 12:30pm to 1:30pm
We are also looking for young adult mentors aged 16 and over.
We will be meeting at the front of the East Brunswick Jewish Center. The address of the event is 615 George Street New Brunswick, NJ 08901-1176. We have an indoor facility that we will be doing out events in.
The purpose of this program is to help children with their social skills and engage them in teambuilding activities. Each child will be paired with a mentor.
View the flier for Kids Team Builders here
Mountaineers Day (Ages 15 and older)
Mountaineers Care Day will take place on Friday, May 6th 2016 from 11:30am to 2pm at West Orange High School. The address of the event is 51 Conforti Ave, West Orange, NJ 07052. The event is completely accessible. You can park at the high School for free. We will still be having our mentoring panel it will start 1:30pm.
You must register for Mountaineers Care Day by following the link below. You also must register for our mentoring panel. You can also follow the link to find out more information.
You can view the flier for Mountaineers Care Day Here
If anyone is having difficulty finding our events feel free to call me at 908-616-5091. Both of our events are completely accessible.
Mountaineers Care Day https://www.dropbox.com/s/1mmmng5yh82uvj0/Public%20Flier.jpg?dl=0
Kids Team Builders
Upcoming Events at Sensational Kids
Starting Monday, January 25th
3-6 year olds: Mondays 4:30-5:30pm
Is your child struggling to make or keep friends? Our social skills play groups are lots of fun. Children love our sensory-motor gym and learn to make friends during cooperative projects, sensory activities, board games and music. Sessions improve the ability to perform as part of a group, share, take turns, attend and learning to cope with challenges and disappointment. Children learn how to be a friend as well as make friends, control impulses and handle frustration. We provide weekly parent carry-over and consult with parents on managing behavior at home.
Tween Social Skills Group
Starting Monday, January 25th
7-13 year olds: Mondays 6:00-7:00pm
This social skills group is different from others because it will have a focus on developing socials skills essential for the tween aged child preparing to enter the middle school or high school world. This group is for kids who typically have difficulty making friends or reading social cues. It will incorporate technology that appeals to the 10-14 year old age group such as the Wii, iPad and social media sites, which have become part of daily social interactions amongst this age group. Lessons will be interactive, child-directed and differentiated to the needs of all group members. Themes will incorporate trending topics and interests of this peer group and will be developed through child and parent insight and feedback. Home recommendations will be made after each week.
Be sure to like us on Facebook for therapist tips and Sensational Kids events
Join us for our 6 week or 4 week summer camp program. Click on the link above for more information!
We have some new workshops in March and April. Click on the link above for dates and workshop topics.
All Groups Are One Hour A Week for 10 Weeks
Both of the Social Skills Groups are run by Jessica Johnstone.
She is a board certified Behavior Analyst, BCBA
For Enrollment, Call the Office at 856-810-5777 or
Support Group for Parents of Children with Special Medical Needs
Bayada Pediatrics Host Support Group
Monthly support group for parents of children with special medical needs, on Thursday, January 21 at our office at 521 Fellowship Road, Suite 160, in Mt. Laurel.
From 6:30 pm to 9:00 pm, parents of children with special needs are able to talk about their children, relate to each other, and exchange resources. Whether it's medical or emotional support that's needed, we do our best to provide it.
Connect with other parents who understand at Parent Night. You can share your stories, experiences, successes, and obstacles in an informal, caring environment. Share as much or as little as you feel comfortable. The monthly support group is free and open to parents of children of all ages with a wide range of diagnoses and medical needs such as trach, vent, CP, seizure disorders, g-tubes, cardiac issues, metabolic disease, muscular dystrophy, congenital anomalies, COPD, BPD, Down Syndrome and TBI, to name just a few.
THE MEALTIME JOURNEY
Michelle Davis-Korngut, MS OTR/L and Meghan Quan, an experienced feeding therapist from Pediatric Therapy Solutions, LLC will be co-hosting a parent series titled
"The Mealtime Journey"
Thursday, Jan 14, 2016 7-8PM: First Foods!
Thursday, Feb 11, 2016 7-8PM: Toddler Mealtime
Thursday, March 10, 2016 7-8PM: Anxious Mealtimes
Does your child…
- · refuse to eat or drink?
- have poor weight gain?
- eat a limited variety of food?
- avoid certain food groups or unable to transition from foods of different textures?
- display disruptive mealtime behaviors?
- have foods they once loved to eat, but refuses them now?
- have difficulty chewing and/or swallowing different food?
- refuse nipple and/or gags with insertion of bottle?
- gag, cough, or vomit while eating?
- depend on nasogastric or gastrostomy tube feedings?
If you answered YES to any of these questions, your child may benefit from feeding therapy and this lecture series.
SPACE IS LIMITED SO CALL OR EMAIL TO RESERVE A SPOT
LECTURES $10 EACH or $30 for the series
For more information contact Michelle Davis-Korngut, MS OTR/L
Pediatric Therapy Solutions, LLC
...Helping Kids Help Themselves
3131 Princeton PikeBuilding 4 Suite 100
Lawrenceville, NJ 08648
Like us on: Facebook
PHYSICIANS GET A REVIEW OF THE INDIVIDUALS WITH DISABILITIES ACT
Guidance for Doctors on Special education
in the journal Pediatrics last month, the American Academy of Pediatrics says that doctors have a significant role to play in ensuring that children with disabilities get the services they need from schools.
The report reviews the Individuals with Disabilities Education Act, detailing school districts' responsibilities to provide help for young children through the transition to adulthood.
The article can be found at: http://pediatrics.aappublications.org/content/136/6/e1650
TREADMILL FOR SALE
E-mail Alice at firstname.lastname@example.org for more information, including pictures.
Check this link for some good information about treadmill therapy:
SEEKING BOARD MEMBERS
Interested in serving on our board?
SEEKING self advocates for our board
Teens and adults with Down Syndrome and Emerging Leadership Skills See below
email email@example.com if interested.
Other great organizations with ongoing opportunities
DOWN SYNDROME ASSOCIATION OF CENTRAL NEW JERSEY
The Down Syndrome Association of Central New Jersey (DSACNJ) is a non-profit parent support group, established to assist families of children and adults with Down Syndrome as a point of contact, support, up to date information and fun and enriching social gatherings. We celebrate the lives of our children and encourage them to reach their full potential.