Project By: Lily Jones
What is Adrenoleukodystrophy?
“'Adreno,' refers to the adrenal glands, while, 'leuko,' is the Greek word for white. 'Dystrophy,' means, 'impaired growth. Adrenoleukodystrophy (ALD) affects a person's adrenal glands and the growth of myelin” (1 Weiss).
What chromosome is affected by this disorder?
Are there prenatal tests for Adrenoleukodystrophy?
What are symptoms of Adrenoleukodystrophy?
What population is affected by Adrenoleukodystrophy?
“Around one in every one-hundred thousand people is affected by ALD” (2 Weiss).
Can anyone be a candidate for Adrenoleukodystrophy?
How is Adrenoleukodystophy inherited?
What kind of medical assistance will the affected child need?
Will further assistance be needed, as the child grows older?
What is the long-term outlook for the child?
Depending on the condition of ADL the child could live for up to 10 years but will spend most of it's life in coma.
Are there any treatments or cures for Adrenoleukodystrophy?
Can Adrenoleukodystrophy be prevented?
If an individual has Adrenoleukodystrophy can they have children in the future? If so will their children be affected?
What is the current current status of research on adrenoleukodystrophy?
Is there a cure/new treatment coming soon?
Delgado, Amanda, and Elizabeth Boskey. "Adrenoleukodystrophy."Healthline. Health Line, n.d. Web. 04 May 2016.
Kemp, Stephan. "Facts on ALD." Xlinked Adrenoleukodystrophy Database Facts on ALD Comments. ADL Database, 7 Apr. 2016. Web. 04 May 2016.
Weiss, Thomas C. "Adrenoleukodystrophy - Facts and Information."Disabled-World: Towards Tomorrow. Disabled World, 28 Mar. 2010. Web. 4 May 2016.
Krieger, Kennedy. "Diagnosing ALD." The Stop ALD Foundation. STOP ALD FOUNDATION, n.d. Web. 04 May 2016.
Haldeman-Englert, Chad. "Adrenoleukodystrophy - Penn State Hershey Medical Center." Penn State Hershey Medical Center. Penn State, 27 Oct. 2015. Web. 04 May 2016.