Angels Of Epilepsy Newsletter
December - #AOENEWS, Blogs, Articles, & More!
Imagine having to choose from over 14,000 different treatment scenarios to decide which drugs might be best for a child or a loved one affected by epilepsy. This is what faces many families according to the experts at Stanford and doc.ai who have announced a new type of clinical trial using artificial intelligence (AI). The project’s goal is to help make the process more scientific using population data and less prone to lengthy individual trial-and-error. Researchers are analyzing medications, side effects, genomic information, environmental exposures, activity and even physical traits. This type of work produces vast amounts of information and requires so much processing power that it can only be performed by the latest AI systems.
The trial is being sponsored by Silicon Valley health-tech start-up doc.ai, which already has launched AI-based studies for Inflammatory Bowel Disease and Allergies. The novel approach has led to major institutional attention and participation. The company has teamed with Anthem who describes their collaboration as a “virtuous cycle” that lets the insurer benefit from A.I. technologies and help lead to more empowered patients.
This blog post was submitted by Sunovion Pharmaceuticals Inc., the Founding Sponsor of the November 2019 Epilepsy Blog Relay .
You are such a beautiful child. Your smile brightens the room and everyone in it when you enter. It’s like you have the light when it’s dark. You were only five when you were diagnosed with epilepsy. At times, life may seem hard for you, but know that you are strong! I am here to share some advice that may help you along the way.
I know you are frightened of elementary school because there are so many people there who aren’t your family. Sometimes you’re embarrassed about a visible bump or bruise from a seizure. You want to stay home from school to hide it. Please don’t spend so much time feeling afraid of embarrassing yourself and your family. You’re putting that shame on yourself. You have amazing and supportive people around you—friends and teachers who are right there with you. No one will bully or make fun of you because of epilepsy—and when you grow up, you’ll help young people living with epilepsy who have been bullied. You’ll help them be strong because you are strong, even though you might not know that yet.
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By: Stacey Chillemi
My heart goes out to all of them because each time I read one of these messages on Facebook I can relate to them because at some time in the course of my life I experienced what they are experiencing now.
- experienced concussions
- acquired a hematoma on my head by falling headfirst on the ground
- gotten broken bones
- acquired many cuts and bruises
- almost drowned in a bathtub
- have cracked my head open
- permanent memory loss from my concussions
- experienced several near-death experiences
and the list can go on. But I am not here to ask for sympathy or to have others recognize the extent of hardship that I endured, because honestly, everyone goes through tragedy and everyone experiences pain in their life.
Christmas Funfetti Cake Batter Truffles
Baking & Spices
1/2 cup All purpose flour
1/2 cup Granulated sugar
1/2 tsp Vanilla
1 cup White cake mix
Nuts & Seeds
1 1/2 cups White chocolate chips or vanilla almond bark
1/4 cup Butter
2 tbsp Milk
1 tablespoon Christmas sprinkles ( + more for decoration)