Low Incidence Transition Newsletter
April 2022
Easterseals Summer Camps
Club Lily camps offer weekend retreats and week-long adventures that are for adults, who are 18 and over. Camp Amp is a spring weekend retreat for teens, who are ages 11-17. Camps bring a multitude of abilities together to foster friendship, independence, skill-building, and fun through traditional camping activities such as fishing, boating, hiking, arts and crafts, pool time, and games. Easterseals also offers unique ‘challenge by choice’ programming so campers can try something new by participating in activities like ziplining and wall climbing.
Our number one goal is to make camp a memorable, enjoyable, and safe experience for everyone!
21 and Able
UPCOMING EVENTS:
April 11: 10:30 am-12:30 pm Discussion Meeting. For Parent & Family Caregivers
April 12: 1-2:30 pm Housing and Independent Living
April 26: 10-11:30 am Wills and Trusts
May 9: 10:30 am-12:30 pm Discussion Meeting. For Parent & Family Caregivers
May 10: 1-2:30 pm Social Security
If you need accommodations or additional support to attend, please contact Lucy Prawl: lprawl@pealcenter.org
You can register here: https://www.eventbrite.com/e/21-and-able-powered-by-united-way-pennsylvania-transition-tickets-265112076357
EVENTS
Supported Decision Making
Supported Decision-Making (SDM) allows people with disabilities to make choices about their own lives with support from a team of people they choose.
Attend this session and learn among other things:
- What is Decision Making?
- What is Supported Decision Making?
- What is Decision Making Capacity?
- Health Care and Financial Decision Making Supports
Presenters: Nancy Murray, President, The Arc of Greater Pittsburgh; and Kelly Darr, Legal Director, Disability Rights PA.
Thursday, Apr 7, 2022, 10:00 AM
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Transition to Adult Healthcare
**THIS IS OFFERED ON APRIL 7th and APRIL 21st at 12:00pm to 1:00pm**
Transition to Adult life is an important milestone in anyone’s life, but it’s especially important for those who experience intellectual and/or developmental disabilities. We often only talk about transition from school, but healthcare transition must be a part of the plan.
Join Dr. McCormick as he shares with us how to better prepare for pediatric to adult healthcare. The four sessions being offered will build upon each other to help you build a better plan.
Presented by Dr. Andrew McCormick, MD, FAAP, Director, Healthy Transitions Program at UPMC Children’s Hospital of Pittsburgh.
REGISTRATION
Visit this link to register for this session: https://tinyurl.com/yckt2s5h
You will receive the Zoom Meeting information after you register
You can also register by calling (267) 702- 1601.
For more information, email visionforequality@visionforequality.org.
Thursday, Apr 7, 2022, 12:00 PM
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L.E.A.D the Way to Healthy Relationships
Join the PA Family Network Advisors Zoom Workshop as we plan and problem for your loved one with intellectual disabilities and/or autism to have successful relationships by:
• identifying possible ways to apply LifeCourse Framework and Tools in useful, flexible, and simple ways;
• discussing strategies on how to define a friend and establish appropriate boundaries in relationships;
• introducing consent and sharing steps to help mitigate their risk of being taken advantage of;
• suggesting information to adapt our loved one’s level of understanding and ideas for application in real life.
NOTE: Family Members attending the workshop will be welcome to attend a 30 minute family-only networking opportunity after the presentation.
Click to Join the Zoom Meeting: https://us02web.zoom.us/j/82905633941?pwd=QnBWZTVPcHhyTjdkUFVYaE8reTlvZz09
Meeting ID: 829 0563 3941
Passcode: 637984
Monday, Apr 18, 2022, 06:00 PM
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Beyond Group Homes: Housing Options
Explore various housing options, funding sources and
service models that provide greater control for self-advocates and families than traditional group homes. Topics Include: Reverse life sharing, family purchased homes, home ownership by adults with developmental disabilities, ownership by trusts, rentals, housing subsidies, shared housing, additions.
REGISTRATION
- Visit this link to register for this session:
https://tinyurl.com/5ey348nd - You will receive the Zoom Meeting information
after you register. - You can also register by calling (267) 702-1601.
For more information, email visionforequality@visionforequality.org.
Presented by David Gates, a Senior Attorney and Director of Policy based in Philadelphia Health Law Project’s Harrisburg office.
Tuesday, Apr 19, 2022, 10:00 AM
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Long Term Planning
Join the PA Family Network in this workshop to plan and problem solve if/when we cannot support our loved one with intellectual disabilities and/or autism:
- Connect and network with other families.
- Get information and strategies on handling Long Term Planning*.
- Discuss and receive guidance on how to identify and share what is most important to our loved ones to live a meaningful and good life. **Cannot offer legal or financial advice
NOTE: Family Members attending the workshop will be welcome to attend a 30 minute family-only networking opportunity after the presentation.
Click to Join the Zoom Meeting
Meeting ID: 829 0563 3941
Passcode: 637984
Monday, Apr 25, 2022, 06:00 PM
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Beth Heinz
Autistic Support Teacher
Low Incidence Transition Coordinator
Phoenixville Area School District
Email: heinzb@pasd.com
Phone: 484-927-5161